Childhood Cancer Country Profile | Poland

The OCEAN project studied 38 European countries, including all 27 EU member states plus 11 countries that are part of the SIOPE and/or CCI-E networks.

The epidemiological data were collected from the European Cancer Information System site https://ecis.jrc.ec.europa.eu, accessed on 19/march/2024 © European Union, 2024. These data are estimates and not crude population based data. They may differ from the population-based data available at the country level. There is a need for a comprehensive and accurate population based registration of cancer incidence and mortality in children and young people across Europe using ICCC.

Survival data are provided by the Eurocare 6 population based study analyzing 135 847 children, aged 0 – 14 years diagnosed between 2000 and 2013 and followed up to the end of 2014 from 80 population based registries from 31 countries. (Botta et al. Lancer Oncol 2022, 23, 1525;)

For the organization of care, a cross-sectional questionnairebased survey was conducted. Country Operating Teams (COT) were formed, including a senior paediatric oncologist, Chair of the National Paediaric Hemato Oncology Society, a Young SIOPE member (representing an early career paediatric oncologist), and a patient or parent advocate from CCI-Europe. The survey consists of 29 questions across six thematic sections. The survey covered topics such as organizational and national care levels, care delivery, active treatment, care for adolescents and young adults (AYA) with cancer, follow-up care, and patient representatives/parents.

For the organization of research, the ClinicalTrials.gov database was searched to identify all European cancer clinical interventional studies that allowed inclusion of paediatric patients and adolescents (<18 years) and that started between 2010 and 2022. Only European trials (with open sites at ≥1 European countries) were included.

A quality review was performed by three investigators. The selected trials were subsequently reviewed by the SIOPE’s European Clinical Trial Groups (ECTGs), which were asked to remove and/or propose additional trials if any were missing.

For the section of the project presenting data for Poland please see: https://siope.eu/media/documents/ocean-projectpoland.pdf